Privacy Policy

SAPHIRe is a consortium led by the Flanders Government, Department of Economy, Science and Innovation. The other partners are the Regional Agency for Public Health and Social Wellbeing (PHA, Northern-Ireland, UK), EIT Health InnoStars, and EuroBioForum. This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825046. 1/3

This privacy policy describes the processing of personal data for the execution of the SAPHIRe project (consortium for Securing the Adoption of Personalised Health in Regions funded by European Union’s Horizon 2020 research and innovation programme under grant agreement No 825046). This project will be executed and will be controlled by following parties who will act as joint controllers for the processing of personal data for the SAPHIRe project:

1. Vlaams gewest (VL-O) - EWI, Koning Albert II-laan, 35, 1030 Brussel

2. Regional agency for public health and social well-being (PHA), Linenhall Street 11 22, Belfast BT2 8 HS, United Kingdom

3. EIT Health Innostars EV (InnoStars), Lichtenbergstrasse 2/A, Garching 85748, Germany

4. Stichting Eurobioforum (EBFF), Chrysantstraat 10, Vlaardingen 3135 HG, Netherlands

We value your privacy and the protection of your personal data. Therefore, we want to be transparent about the reasons for processing your personal data. We also want to be clear about your rights as a data subject with regards to your personal data. Therefore, we recommend you to read this policy carefully and if you have any questions, to contact one of the parties mentioned above.

This privacy policy was created in accordance with the principles and requirements for processing personal data set out in the General Data Protection Regulation1 (hereafter GDPR). If necessary, changes can be made to this policy. In this case, you will be notified about these changes in time. For the purpose of this privacy policy, personal data means, in accordance with the GDPR: ‘any information relating to an identified or identifiable natural person; an identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as a name, an identification number, location data, an online identifier or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person’. For the SAPHIRe project we process personal data received directly from the data subject but also personal data we collected from publicly accessible channels or data that one of the joint controllers already has in his possession.

1 Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2017 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation)

PURPOSES FOR PROCESSING PERSONAL DATA SAPHIRe is a consortium led by the Flanders Government, Department of Economy, Science and Innovation. The other partners are the Regional Agency for Public Health and Social Wellbeing (PHA, Northern-Ireland, UK), EIT Health InnoStars, and EuroBioForum. This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825046. 2/3

The major aims of SAPHIRe are to support regions in Europe to structure the implementation and adoption of personalised medicine in regional healthcare systems by identifying and addressing specific regional gaps and barriers. To realise these goals, SAPHIRe will create a network of regions and their ecosystems, including all stakeholders across the entire value chains. Regions are well placed to bring personal medicine and healthcare closer to the citizen. Pilot projects in and between regions could provide the much-needed evidence for the adoption of personalised medicine in regional as well as national health systems. Best practices on the implementation of personalised medicine from regions across Europe will allow to develop a modular roadmap. Region-specific recommendations on policy, funding and investments needs will be extracted to stimulate the development and deployment of interregional (cross-border) collaboration projects. SAPHIRe will run over the next three years and plans to engage with regional stakeholders, including policymakers, industrial and academic actors via a series of thematic workshops.

In order to execute this project, we process personal data for the realisation of following purposes:

We process your name, professional contact details and your job function so we can contact you to join our workshops where we want to collect as much input as possible for the SAPHIRe project.
We process your name, professional contact details and your job function so we can invite you to future events, related to the SAPHIRe project and to keep you informed on the progress of the project.
We process your name, professional contact details and your job function so we can keep you informed on the progress of the project.
We want to store your name, professional contact details and your job function in the SAPHIRe database in order to contact you for your expertise in the field

We only process personal data for the purposes mentioned above if you consent to this. We will ask your consent for each purpose through a consent form. After giving consent you will have the right to withdraw your consent at any time. However, this withdrawal of consent shall not affect the lawfulness of processing based on consent before its withdrawal. To withdrawal consent, see further under RIGHTS OF THE DATA SUBJECT and CONTACT. If you don’t give your consent to any of the processing activities, we will respect this decision and we will no longer contact you concerning this project and we won’t process your data any longer for the purposes of this project.

THE RETENTION PERIOD OF THE PERSONAL DATA

We take appropriate technical and organisational measures to protect your personal data and to make sure we keep your data only as long as necessary for the realization to the purposes mentioned above. The retention period of the personal data therefore depends on the purpose for which they were collected. You can contact us If you no longer want us to keep your data or if you wish to receive more information concerning the retention period of your personal data. SAPHIRe is a consortium led by the Flanders Government, Department of Economy, Science and Innovation. The other partners are the Regional Agency for Public Health and Social Wellbeing (PHA, Northern-Ireland, UK), EIT Health InnoStars, and EuroBioForum. This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825046. 3/3

More information on how to contact us, can be find under CONTACT in this policy.

RIGHTS OF THE DATA SUBJECT

With regards to your personal data, you have several rights you can exercise.

You have the right of access to your personal data; You also have the right to rectify personal data that is no longer accurate or complete.

Furthermore, you have the right to object to processing of your personal data, to request the restriction of processing of your personal data, you have the right to obtain the erasure of your personal data and you have the right to request the portability of your data.

Finally, for the processing of personal data for which you gave your consent, you have the right to request the withdrawal of that consent at any time. However, this withdrawal of consent shall not affect the lawfulness of processing based on consent before its withdrawal.

CONTACT

If you want to exercise any of your rights or if you have any questions regarding the processing of your personal data you can contact any of the joint controllers through following e-mail address:

1. Vlaams gewest (VL-O) - EWI,

Koning Albert II-laan, 35, 1030 Brussel

EWI, DPO dpo@ewi.vlaanderen.be

In case of complaints or questions concerning your personal data, you can also contact the authorized Supervisory Authority.

- the Vlaamse Toezichtcommissie (contact@toezichtcommissie.be).