SAPHIRe workshops

Workshop 7: Webinar: Making data usable: Regional considerations, best practices and examples

EU citizens have the right to access healthcare in any EU country and to be reimbursed for care abroad by their home country. To realise this right, the appropriate infrastructures and standards should be created. Regional providers of health data, such as (university or regional) hospitals, first line healthcare or genetic centres, collect massive amounts of health data. This creates a large need for interoperable and accessible data.

Big data sets include electronic health records (EHR), data resulting from imaging technologies, other large throughput (-omics) technologies, and wearables or health and lifestyle (mobile) apps. The differences in governance of health data, the different authority levels, and the ethical and cultural diversity across European regions further complicate the swift uptake of personalised medicine.

To gain a better understanding on the regional perspectives to make health data accessible, SAPHIRe will host an online interactive workshop on Thursday 26th November 2020, 10h30-12h30 CET. During the webinar we will discuss regional best practices, examples and lessons learned.

You can register here. A participation link will be sent to you one day prior to the event.

 

Confirmed speakers:

  • Gianni D’Errico, Coordinator Regions4PerMed

  • Gary Saunders, Human Data Coordinator at ELIXIR

  • Bart Verheyden, LynxCare

  • Nathan Lea, head of i~HD‘s Information Governance & GDPR Task Force

  • Satu Väinämo, University of Oulu

Speaker bios

Speaker presentations​

Webinar video presentations

Ceci n’est pas un silo - Electronic health data reuse

Nathan Lea - The European Institute for Innovation through Health Data

Federation of sensitive human genomics data

Gary Saunders - ELIXIR

Interregional coordination for a fast and deep uptake of personalised health

Gianni D'Errico- Regions4PerMed

Driving data outcomes

Bart Verheyden- Lynxcare

DigiHealth Hub: Digital and data skills development

Satu Väinämo - University of Oulu

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This project has received funding from the European Union’s Horizon 

2020 research and innovation programme under grant agreement No 825046

The project is co-ordinated by Department Economy, Science and Innovation (EWI) of the Flemish Government.

Department Economy, Science and Innovation - Koning Albert II-laan 35 1030 Brussels, Belgium